IDIC 15

I received a answer finally after nearly a year of tests on my poor baby.
In a way I wish it was wrong, I wish we were still searching; I want to kick and scream that they are wrong, that my baby just has something little that can be fixed with some simple something anything even a magic wand.  I want it to be something else, something I can handle easily that won't change the rest of our lives
but it's not...

instead we will face

IDIC 15

 

http://www.rarechromo.org/information/Chromosome%2015/Idic15%20FTNW.pdf

(this will take you to a pdf of the disorder that takes a moment to load)
I cried on the way home

I can't fix it

and I will never be able to.

My baby is 1 in 30 000

my baby will not be like other children

I know at this point I do not know the severity of it all

I just know what i have read.

to be honest it scares me; making me want to throw the computer because it's wrong it can't be right.

but it is what it is.

♥I LOVE MY LITTLE PRINCESS♥

she is perfect.

I honestly don't care if she is different

what bothers me is I won't be able to always protect her from others.

I have worked with people with learning disabilities

and witnessed first hand how they can be treated

I have seen people shun them

I have heard the crude and hurtful comments

I have even snapped at those whose mocking cruelty has left small daggers in those mocked.

The world does not understand...

and I weep knowing that my loving, smiling, inquisitive, music loving, easy going baby will eventually ask me

WHY?

 

I know it's not going to be easy and there are MANY things I will have to learn;

Many people I will need help from;

and Many more appointments to attend (I hate Dr's offices, so do my kids. I'm going to have to put together some activity bags; honestly I don't know why I havn't already... wait yes I do time lol).

 

Already I am thankful  for the kindness and support of others

even from those who have gone through this; who's children are fighting the same battle. I am grateful for the support and knowledge that I am not alone there are others who understand.
Thank you everyone.

Blessings!

 

One of the most amazing things happened today. It brought me to tears.

Background first. I make hair bows and had placed a few on a bidding site. A wonderful lady our bid on a couple of them and won them for $2 each. When she came to get them she looked at a few of my other bows and ended up buying $25 worth. I was so excited it was great. It made me feel awesome. I was selling the bows so I could get a couple toys for my kids that our small budget couldn't provide. My husband has been out of work for some time and no one in his field of study will hire him because he has no experience with his collage diploma (he's working to a degree as well). So things are tight and $25 really is a lot to us.
but that's not the most amazing part...

this fantastic Angel (for that's what she is) came back shortly later and handed me an envelope and a sparkly purple poinsettia wishing me Merry Christmas before leaving. In the card was a gift card from her and "the Wal-Mart lady" and $10 more dollars.

I cried.  

I don't know these people and here they gave me so much. I pray they have, a wonderful Christmas and more, receiving all the blessing they can for they deserve them and more.