IDIC 15

I received a answer finally after nearly a year of tests on my poor baby.
In a way I wish it was wrong, I wish we were still searching; I want to kick and scream that they are wrong, that my baby just has something little that can be fixed with some simple something anything even a magic wand.  I want it to be something else, something I can handle easily that won't change the rest of our lives
but it's not...

instead we will face

IDIC 15

 

http://www.rarechromo.org/information/Chromosome%2015/Idic15%20FTNW.pdf

(this will take you to a pdf of the disorder that takes a moment to load)
I cried on the way home

I can't fix it

and I will never be able to.

My baby is 1 in 30 000

my baby will not be like other children

I know at this point I do not know the severity of it all

I just know what i have read.

to be honest it scares me; making me want to throw the computer because it's wrong it can't be right.

but it is what it is.

♥I LOVE MY LITTLE PRINCESS♥

she is perfect.

I honestly don't care if she is different

what bothers me is I won't be able to always protect her from others.

I have worked with people with learning disabilities

and witnessed first hand how they can be treated

I have seen people shun them

I have heard the crude and hurtful comments

I have even snapped at those whose mocking cruelty has left small daggers in those mocked.

The world does not understand...

and I weep knowing that my loving, smiling, inquisitive, music loving, easy going baby will eventually ask me

WHY?

 

I know it's not going to be easy and there are MANY things I will have to learn;

Many people I will need help from;

and Many more appointments to attend (I hate Dr's offices, so do my kids. I'm going to have to put together some activity bags; honestly I don't know why I havn't already... wait yes I do time lol).

 

Already I am thankful  for the kindness and support of others

even from those who have gone through this; who's children are fighting the same battle. I am grateful for the support and knowledge that I am not alone there are others who understand.
Thank you everyone.